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G6PD deficiencyis the most commongenetic enzyme deficiencyin the world. -
Most at riskare the most vulnerable —infants in their firstweek or two of life. -
Most of the timethose who are G6PD deficientsuffer no apparent harm.but for somethe effects are devastating. -
Help us spread the wordabout this condition,and avoid needlesssuffering and distress.
Home
Fast Facts
Get educated on the basics of this enzyme deficiency, the populations it affects, as well as the statistics behind it all.
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Screening
What methods are available, who should be screened, and what are the challenges with each of the available options for screening.
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AUGUST 1st 2020- Canceled due to COVID-19 restrictions
Awareness/Fundraiser Event: Paddle or Pedal in Babylon Village, NY to collect wristbands and learn more about G6PD enzyme deficiency.
For more info & Discount tickets
Brody’s Battle
Brody’s Battle happened in the first ten days of his life and nearly ended it, leaving him with terrible brain damage caused by a condition called Kernicterus. Our foundation was started to spare other newborns such life threatening events by raising awareness of how undiagnosed G6PD deficiency can cause Jaundice. A Kernicterus event can occur if neonatal Jaundice is not properly managed.
This story does not have to happen to another family… read more »
Knowledge Affects Lives.
Calling all those who are diagnosed G6PD deficient! We established a 15-minute survey for you. Your input will help us have a better understanding of those who are living with this enzyme disorder. The importance of this survey is to seek validation to healthier ways of living having G6PDd. It creates an unbiased compass that will help direct the Foundation to its next topic of research!
Time for change!
The Foundation wants to provide the most up to date information on G6PDd and needs your support. You can help our growing G6PD Deficiency Awareness Campaign by giving a donation today. Thank you!