AUGUST 1st 2020- Canceled due to COVID-19 restrictions
Awareness/Fundraiser Event: Paddle or Pedal in Babylon Village, NY to collect wristbands and learn more about G6PD enzyme deficiency.
For more info & Discount tickets
Brody’s Battle happened in the first ten days of his life and nearly ended it, leaving him with terrible brain damage caused by a condition called Kernicterus. Our foundation was started to spare other newborns such life threatening events by raising awareness of how undiagnosed G6PD deficiency can cause Jaundice. A Kernicterus event can occur if neonatal Jaundice is not properly managed.
This story does not have to happen to another family… read more »
Knowledge Affects Lives.
Calling all those who are diagnosed G6PD deficient! We established a 15-minute survey for you. Your input will help us have a better understanding of those who are living with this enzyme disorder. The importance of this survey is to seek validation to healthier ways of living having G6PDd. It creates an unbiased compass that will help direct the Foundation to its next topic of research!