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X-WR-CALDESC:Events for g6pd Deficiency Foundation
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DTSTART;TZID=America/New_York:20250623T080000
DTEND;TZID=America/New_York:20250623T170000
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UID:3116-1750665600-1750698000@g6pddf.org
SUMMARY:First Annual Golf Tournament & Celebration
DESCRIPTION:Welcome to the G64Health GOLF TOURNEY! Get ready to tee off on Mon Jun 23 2025 at one of the shotguns times: 8AM 10AM or 12PM at the Par 3 beautiful E Donald Conroy Golf Course. This golf Tourney is to play 9 holes with 6 Clubs only. \nJoin us for a day of fun\, friendly competition\, contests\, great raffles and of course\, plenty of celebrations to follow! The G64Health Celebration will take place down the street at Lily Flanigan’s Pub from 2PM -5PM. Beer-Wine & Food are included! Whether you’re a seasoned pro or a beginner\, this event is perfect for adult golfers of all skill levels. \nAll proceeds will go to the g6pd Deficiency Foundation’s Awareness Campaign. \nDetails \n\nThree shotgun starts for one round of golf: Choose: 8 a.m. 10 a.m. 12 p.m.\n9 Holes\, Par 3\, 6 Clubs\nEarly bird raffle deadline: 5/15/2025\nRegistration deadline: 6/9/2025\nG64Health Celebration from 2 to 5 p.m. at Lily Flanagan’s Pub in Babylon (beer/wine/food included\, plus raffles and golf awards)\n\n \nTickets \nGolf Player includes Celebration & 6 Raffle Tickets $150 \nCelebration Only (No Golf) & 3 Raffle Tickets $100 \nBuy Tickets Online Now by Clicking Here or Email info@g6pddf.org for tickets by check or Zelle.
URL:https://g6pddf.org/event/first-annual-golf-tournament-celebration/
LOCATION:E. Donald Conroy Golf Course\, 75 Cedar Street\, Babylon\, NY\, 11702\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://g6pddf.org/wp-content/uploads/2025/04/first-annual-golf.jpg
ORGANIZER;CN="G6PD Deficiency Foundation":MAILTO:kharris@g6pdDF.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231021T080000
DTEND;TZID=America/New_York:20231023T170000
DTSTAMP:20260513T170126
CREATED:20231013T212926Z
LAST-MODIFIED:20231013T212942Z
UID:2552-1697875200-1698080400@g6pddf.org
SUMMARY:AAP National Conference & Exhibition
DESCRIPTION:The g6pd Foundation will be exhibiting at the AAP National Conference & Exhibition Oct. 21-23 Come visit us at Booth #1049.
URL:https://g6pddf.org/event/aap-national-conference-exhibition/
LOCATION:Washington D.C.
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://g6pddf.org/wp-content/uploads/2023/10/AAP.jpg
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DTSTART;TZID=America/New_York:20230519T120000
DTEND;TZID=America/New_York:20230519T130000
DTSTAMP:20260513T170126
CREATED:20230517T130102Z
LAST-MODIFIED:20230517T130610Z
UID:2339-1684497600-1684501200@g6pddf.org
SUMMARY:NBSTRN 2023 Network Meeting
DESCRIPTION:2023 NBSTRN Network Meeting: Celebrating Advocacy and Research on the 60th Anniversary of Newborn Screening\nIn 2023\, the newborn screening (NBS) community of researchers\, healthcare professionals\, parents\, families\, advocates\, and state newborn screening programs are celebrating the 60th anniversary of NBS. On May 18-19\, 2023\, the Newborn Screening Translational Research Network (NBSTRN) is marking this significant milestone with a two-day virtual meeting that will showcase the important role of advocacy and research in NBS. In 1963 Dr. Robert Guthrie’s discovery of a biomarker for phenylketonuria (PKU) that could be detected in a newborn’s blood ignited six decades of ground-breaking investigations by researchers have delivered new screening\, diagnostic technologies and therapies that have expanded NBS to over 80 conditions. Advocacy from parents\, families\, and communities have collectively accelerated this expansion of NBS and continues to highlight important areas where the NBS community can work to ensure the timely diagnosis\, treatment\, and lifelong management of newborns identified with a condition through NBS. \n2023 also marks the 15th year of ACMG leading the NBSTRN. Since 2008 the NBSTRN has facilitated ground-breaking research in NBS and facilitated the expansion of NBS and the translation of research into clinical practice and public health. The NBSTRN team at ACMG has a mission to facilitate the discovery and validation of novel technologies to screen and diagnose disease\, pilot new technologies and treatments\, describe the ethical\, legal\, and social implications of NBS research\, and collect longitudinal health and genomic data. By joining the NBSTRN network\, the ACMG community can help build new connections and strengthen partnerships across government\, academia\, clinical care\, public health\, and industry; support collection\, analysis\, storage\, and sharing of phenotypic and genomic data; guide newborn screening research studies and pilot studies; and support the validation of new technologies and treatments for newborn screening.\n			\n				REGISTER NOW!
URL:https://g6pddf.org/event/nbstrn-2023-network-meeting/
LOCATION:NY
CATEGORIES:Network
ATTACH;FMTTYPE=image/jpeg:https://g6pddf.org/wp-content/uploads/2023/05/NBSTRN-2023-Network-Meeting.jpg
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DTSTART;TZID=America/New_York:20210408T200000
DTEND;TZID=America/New_York:20210408T210000
DTSTAMP:20260513T170126
CREATED:20210329T221855Z
LAST-MODIFIED:20210329T221855Z
UID:1913-1617912000-1617915600@g6pddf.org
SUMMARY:Weighing the Benefits & Risks of COVID-19 Vaccines for the G6PD Deficiency Population
DESCRIPTION:We are sponsoring this FREE exciting live webinar event on Thursday\, April 8th 2021 at 8PM EST.\nDr. Daniel Griffin will be taking center stage to discuss four COVID-19 Vaccines while Dr. Dan Vick will ask questions pertaining to the G6PD Deficiency Population.\nWe will have surprise vaccinated speakers from the G6PD Deficiency population from around the world.\nOpen Q/A forum will take place near end of webinar.\nIn case you miss the live event\, all registrants will receive a link to the recording afterwards. \nREGISTER NOW!
URL:https://g6pddf.org/event/weighing-the-benefits-risks-of-covid-19-vaccines-for-the-g6pd-deficiency-population/
LOCATION:Virtual Webinar\, 156 PO Box\, Babylon\, NY\, 11702\, United States
ORGANIZER;CN="G6PD Deficiency Foundation":MAILTO:kharris@g6pdDF.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20170917
DTEND;VALUE=DATE:20170918
DTSTAMP:20260513T170126
CREATED:20160408T232601Z
LAST-MODIFIED:20160408T232601Z
UID:287-1505606400-1505692799@g6pddf.org
SUMMARY:Fall 2017 Fundraiser
DESCRIPTION:Stay tune\, we are in the planning stages of an event in Long Island\, NY. Contact us if you would like to help!
URL:https://g6pddf.org/event/event-1/
LOCATION:NY
CATEGORIES:Downloadable Information
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