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X-WR-CALDESC:Events for g6pd Deficiency Foundation
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DTSTART;TZID=America/New_York:20231021T080000
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UID:2552-1697875200-1698080400@g6pddf.org
SUMMARY:AAP National Conference & Exhibition
DESCRIPTION:The g6pd Foundation will be exhibiting at the AAP National Conference & Exhibition Oct. 21-23 Come visit us at Booth #1049.
URL:https://g6pddf.org/event/aap-national-conference-exhibition/
LOCATION:Washington D.C.
CATEGORIES:Conference
ATTACH;FMTTYPE=image/jpeg:https://g6pddf.org/wp-content/uploads/2023/10/AAP.jpg
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DTSTART;TZID=America/New_York:20230519T120000
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SUMMARY:NBSTRN 2023 Network Meeting
DESCRIPTION:2023 NBSTRN Network Meeting: Celebrating Advocacy and Research on the 60th Anniversary of Newborn Screening\nIn 2023\, the newborn screening (NBS) community of researchers\, healthcare professionals\, parents\, families\, advocates\, and state newborn screening programs are celebrating the 60th anniversary of NBS. On May 18-19\, 2023\, the Newborn Screening Translational Research Network (NBSTRN) is marking this significant milestone with a two-day virtual meeting that will showcase the important role of advocacy and research in NBS. In 1963 Dr. Robert Guthrie’s discovery of a biomarker for phenylketonuria (PKU) that could be detected in a newborn’s blood ignited six decades of ground-breaking investigations by researchers have delivered new screening\, diagnostic technologies and therapies that have expanded NBS to over 80 conditions. Advocacy from parents\, families\, and communities have collectively accelerated this expansion of NBS and continues to highlight important areas where the NBS community can work to ensure the timely diagnosis\, treatment\, and lifelong management of newborns identified with a condition through NBS. \n2023 also marks the 15th year of ACMG leading the NBSTRN. Since 2008 the NBSTRN has facilitated ground-breaking research in NBS and facilitated the expansion of NBS and the translation of research into clinical practice and public health. The NBSTRN team at ACMG has a mission to facilitate the discovery and validation of novel technologies to screen and diagnose disease\, pilot new technologies and treatments\, describe the ethical\, legal\, and social implications of NBS research\, and collect longitudinal health and genomic data. By joining the NBSTRN network\, the ACMG community can help build new connections and strengthen partnerships across government\, academia\, clinical care\, public health\, and industry; support collection\, analysis\, storage\, and sharing of phenotypic and genomic data; guide newborn screening research studies and pilot studies; and support the validation of new technologies and treatments for newborn screening.\n			\n				REGISTER NOW!
URL:https://g6pddf.org/event/nbstrn-2023-network-meeting/
LOCATION:NY
CATEGORIES:Network
ATTACH;FMTTYPE=image/jpeg:https://g6pddf.org/wp-content/uploads/2023/05/NBSTRN-2023-Network-Meeting.jpg
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DTSTART;TZID=America/New_York:20210408T200000
DTEND;TZID=America/New_York:20210408T210000
DTSTAMP:20210329T221855Z
CREATED:20210329T221855Z
LAST-MODIFIED:20210329T221855Z
UID:1913-1617912000-1617915600@g6pddf.org
SUMMARY:Weighing the Benefits & Risks of COVID-19 Vaccines for the G6PD Deficiency Population
DESCRIPTION:We are sponsoring this FREE exciting live webinar event on Thursday\, April 8th 2021 at 8PM EST.\nDr. Daniel Griffin will be taking center stage to discuss four COVID-19 Vaccines while Dr. Dan Vick will ask questions pertaining to the G6PD Deficiency Population.\nWe will have surprise vaccinated speakers from the G6PD Deficiency population from around the world.\nOpen Q/A forum will take place near end of webinar.\nIn case you miss the live event\, all registrants will receive a link to the recording afterwards. \nREGISTER NOW!
URL:https://g6pddf.org/event/weighing-the-benefits-risks-of-covid-19-vaccines-for-the-g6pd-deficiency-population/
LOCATION:Virtual Webinar\, 156 PO Box\, Babylon\, NY\, 11702\, United States
ORGANIZER;CN="G6PD Deficiency Foundation":MAILTO:kharris@g6pdDF.org
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DTSTART;VALUE=DATE:20170917
DTEND;VALUE=DATE:20170918
DTSTAMP:20160408T232601Z
CREATED:20160408T232601Z
LAST-MODIFIED:20160408T232601Z
UID:287-1505606400-1505692799@g6pddf.org
SUMMARY:Fall 2017 Fundraiser
DESCRIPTION:Stay tune\, we are in the planning stages of an event in Long Island\, NY. Contact us if you would like to help!
URL:https://g6pddf.org/event/event-1/
LOCATION:NY
CATEGORIES:Downloadable Information
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