g6pd Deficiency Foundation

First Annual Golf Tournament & Celebration
2025-06-23 08:00 - 17:00 (America/New_York) | E. Donald Conroy Golf Course, 75 Cedar Street, Babylon, NY, 11702, United States
Welcome to the G64Health GOLF TOURNEY! Get ready to tee off on Mon Jun 23 2025 at one of the shotguns times: 8AM 10AM or 12PM at the Par 3 beautiful E Donald Conroy Golf Course. This golf Tourney is to play 9 holes with 6 Clubs only.
Join us for a day of fun, friendly competition, contests, great raffles and of course, plenty of celebrations to follow! The G64Health Celebration will take place down the street at Lily Flanigan’s Pub from 2PM -5PM. Beer-Wine & Food are included! Whether you’re a seasoned pro or a beginner, this event is perfect for adult golfers of all skill levels.
All proceeds will go to the g6pd Deficiency Foundation’s Awareness Campaign.
Details

Three shotgun starts for one round of golf: Choose: 8 a.m. 10 a.m. 12 p.m.
9 Holes, Par 3, 6 Clubs
Early bird raffle deadline: 5/15/2025
Registration deadline: 6/9/2025
G64Health Celebration from 2 to 5 p.m. at Lily Flanagan’s Pub in Babylon (beer/wine/food included, plus raffles and golf awards)

Tickets
Golf Player includes Celebration & 6 Raffle Tickets $150
Celebration Only (No Golf) & 3 Raffle Tickets $100
Buy Tickets Online Now by Clicking Here or Email info@g6pddf.org for tickets by check or Zelle.

AAP National Conference & Exhibition
2023-10-21 08:00 - 2023-10-23 17:00 | Washington D.C.
The g6pd Foundation will be exhibiting at the AAP National Conference & Exhibition Oct. 21-23 Come visit us at Booth #1049.

NBSTRN 2023 Network Meeting
2023-05-19 12:00 - 13:00 | NY
2023 NBSTRN Network Meeting: Celebrating Advocacy and Research on the 60th Anniversary of Newborn Screening
In 2023, the newborn screening (NBS) community of researchers, healthcare professionals, parents, families, advocates, and state newborn screening programs are celebrating the 60th anniversary of NBS. On May 18-19, 2023, the Newborn Screening Translational Research Network (NBSTRN) is marking this significant milestone with a two-day virtual meeting that will showcase the important role of advocacy and research in NBS. In 1963 Dr. Robert Guthrie’s discovery of a biomarker for phenylketonuria (PKU) that could be detected in a newborn’s blood ignited six decades of ground-breaking investigations by researchers have delivered new screening, diagnostic technologies and therapies that have expanded NBS to over 80 conditions. Advocacy from parents, families, and communities have collectively accelerated this expansion of NBS and continues to highlight important areas where the NBS community can work to ensure the timely diagnosis, treatment, and lifelong management of newborns identified with a condition through NBS.
2023 also marks the 15th year of ACMG leading the NBSTRN. Since 2008 the NBSTRN has facilitated ground-breaking research in NBS and facilitated the expansion of NBS and the translation of research into clinical practice and public health. The NBSTRN team at ACMG has a mission to facilitate the discovery and validation of novel technologies to screen and diagnose disease, pilot new technologies and treatments, describe the ethical, legal, and social implications of NBS research, and collect longitudinal health and genomic data. By joining the NBSTRN network, the ACMG community can help build new connections and strengthen partnerships across government, academia, clinical care, public health, and industry; support collection, analysis, storage, and sharing of phenotypic and genomic data; guide newborn screening research studies and pilot studies; and support the validation of new technologies and treatments for newborn screening.

REGISTER NOW!

Weighing the Benefits & Risks of COVID-19 Vaccines for the G6PD Deficiency Population
2021-04-08 20:00 - 21:00 | Virtual Webinar, 156 PO Box, Babylon, NY, 11702, United States
We are sponsoring this FREE exciting live webinar event on Thursday, April 8th 2021 at 8PM EST.
Dr. Daniel Griffin will be taking center stage to discuss four COVID-19 Vaccines while Dr. Dan Vick will ask questions pertaining to the G6PD Deficiency Population.
We will have surprise vaccinated speakers from the G6PD Deficiency population from around the world.
Open Q/A forum will take place near end of webinar.
In case you miss the live event, all registrants will receive a link to the recording afterwards.
REGISTER NOW!

Fall 2017 Fundraiser
2017-09-17 | NY
Stay tune, we are in the planning stages of an event in Long Island, NY. Contact us if you would like to help!
