g6pd deficiency foundation mission
Currently (10/2020) we are diligently working on both phases of the mission. We are obtaining the most current valid information on G6PD deficiency to be viewed on our website. Creating a seminar/CME for Medical Health providers in regards to G6PDd and newborns. Provide Free informational Handouts. Established a G6PDd Awareness campaign in hopes of a policy for Universal G6PD Deficiency Newborn Screening in USA.
g6pd Deficiency Foundation, Inc.’s purpose is to provide effective and enriching seminars and literature that inform the public about G6PD deficiency. Through the implementation of educational seminars to the general public and medical community, we hope to encourage G6PD deficient individuals to live a healthy life.
g6pd Deficiency Foundation, Inc. is also established to provide assistance to indigent families related to their G6PD deficiency screening process. Through our awareness campaign, we hope to encourage community members to be screened for a healthy and productive life.
Brody’s Battle happened in the first ten days of his life and nearly ended it, leaving him with terrible brain damage caused by a condition called Kernicterus. Our foundation was started to spare other newborns such life-threatening events by raising awareness of how undiagnosed G6PD deficiency can cause Jaundice. A Kernicterus event can occur if neonatal Jaundice is not properly managed.
This story does not have to happen to another family...