Fall 2017 Fundraiser

Stay tune, we are in the planning stages of an event in Long Island, NY. Contact us if you would like to help!

Weighing the Benefits & Risks of COVID-19 Vaccines for the G6PD Deficiency Population

Virtual Webinar 156 PO Box, Babylon, NY, United States

We are sponsoring this FREE exciting live webinar event on Thursday, April 8th 2021 at 8PM EST. Dr. Daniel Griffin will be taking center stage to discuss four COVID-19 Vaccines while Dr. Dan Vick will ask questions pertaining to the G6PD Deficiency Population. We will have surprise vaccinated speakers from the G6PD Deficiency population from around the world. Open Q/A forum will take place near end of webinar. In case you miss the live event, all registrants will receive a link to the recording afterwards. REGISTER NOW!

NBSTRN 2023 Network Meeting

2023 NBSTRN Network Meeting: Celebrating Advocacy and Research on the 60th Anniversary of Newborn Screening In 2023, the newborn screening (NBS) community of researchers, healthcare professionals, parents, families, advocates, and state newborn screening programs are celebrating the 60th anniversary of NBS. On May 18-19, 2023, the Newborn Screening Translational Research Network (NBSTRN) is marking this significant milestone with a two-day virtual meeting that will showcase the important role of advocacy and research in NBS. In 1963 Dr. Robert Guthrie’s discovery of a biomarker for phenylketonuria (PKU) that could be detected in a newborn’s blood ignited six decades of ground-breaking investigations by researchers have delivered new screening, diagnostic technologies and therapies that have expanded NBS to over 80 conditions. Advocacy from parents, families, and communities have collectively accelerated this expansion of NBS and continues to highlight important areas where the NBS community can work to ensure the timely diagnosis, treatment, and lifelong management of newborns identified with a condition through NBS. 2023 also marks the 15th year of ACMG leading the NBSTRN. Since 2008 the NBSTRN has facilitated ground-breaking research in NBS and facilitated the expansion of NBS and the translation of research into clinical practice and public health. The NBSTRN […]

AAP National Conference & Exhibition

Washington D.C.

The g6pd Foundation will be exhibiting at the AAP National Conference & Exhibition Oct. 21-23 Come visit us at Booth #1049.